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Music helps rehabilitate man with rare disease

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The 46-year-old man, who is from the Cree Nation of Saddle lake, about 130 km from Edmonton, has chronic inflammatory demyelinating polyradiculoneuropathy (CIDP).

This is an autoimmune disease that attacks the myelin sheath of the nerves, causing sensory loss and loss of reflexes, especially in the arms and legs.

It is one of those illnesses that can literally devastate a person. When I first got it, I was very frustrated. I got mad because I couldn’t do the things I used to do.

A quote from Nathan Steinhauer

Nathan Steinhauer uses a wheelchair and can no longer play instruments he had been practicing from an early age such as bass, rhythm guitar or drums.

When I listen to music it gives me energy and the will to keep going.

A quote from Nathan Steinhauer

After being diagnosed with IPDC, he moved from Saddle lake in Edmonton, to undergo physiotherapy at the Glenrose Rehabilitation Center.

It was at this point that he was introduced to musician Matt Day, host of the program. Music Care, from the center, which integrates music into recreational therapy.

Elevate one’s mind

Nathan Steinhauer befriended Matt Day through the program and is happy to perform with him.

Both even recorded a few songs in the hospital.

In September, Nathan Steinhauer gained enough confidence to return to the stage for his first show since being diagnosed.

When I sing it uplifts my spirit. That’s why I keep doing it.

A quote from Nathan Steinhauer

I notice that when our spirits are uplifted it helps in healing. So that’s why I do it, he said.

Matt Day says he noticed Nathan Steinhauer’s talents as soon as he met him: He has a real musical sense. It’s just that he can’t hold the instrument. He can’t play right now, but he still has this music in him.

Matt Day says that programs like Music Care can instill hope in those who face challenges.

I really admire Nathan’s tenacity and his way of seeing things, says Mr. Day.: ” I’m not going to let illness rule my life and I’m not going to let the constraints that have been placed on my life lock me in a box. I will continue to live my life. ” “,” Text “:” I respect his ability and his decision to say, ‘I am not going to let the disease rule my life and I am not going to let the stresses that have been imposed on my life to lock me in a box. I will continue to live my life. ” “}}”>I respect her ability and her decision to say, ‘I’m not going to let disease rule my life and I’m not going to let the stresses that have been placed on my life lock me in a box. I will continue to live my life. ”

Back home

Nathan Steinhauer’s rehabilitation is progressing quietly. In June, he was able to stand on a treadmill and hopes to walk again one day.

I know I won’t be 100%, but I have told my grandchildren that I will start walking for them and start doing things with them again.

A quote from Nathan Steinhauer

Nathan Steinhauer is diabetic and had his foot amputated in 2013, which made his rehabilitation even more difficult. He was also recently put on the list for a kidney transplant.

He plans to return to Saddle Lake with his wife, Rhonda Steinhauer, who he says is his biggest support.

With information from Lenard Monkman

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