Home LATEST NEWS HEALTH Unknown disease: a young woman from Saint-Léolin shares her story

Unknown disease: a young woman from Saint-Léolin shares her story

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As is the case for other patients, the monitoring committee which studies the cases of 48 patients potentially suffering from a neurological syndrome of unknown cause recommends that Geneviève Chayer be excluded from the group under study.

Genevieve ChayerEnlarge imageHave (New window)Have

Genevieve Chayer

Photo: Courtesy

She has had health issues for some time. However, it was at 18 that her life changed.

bugged. There were all kinds of things going on that were really not pleasant and were out of control.”,”text”:”At first it was mostly hallucinations, she says. Then it was paralysis. No longer able to move an arm, just like that. It’s like my brain is bugging. There were all sorts of things going on that were really not fun and were out of control.”}}”>At first, it was mostly hallucinations, she says. Then it was paralysis. No longer able to move an arm, just like that. It’s like my brain bugged. There were all kinds of things going on that were really not fun and were out of control.

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The monitoring committee set up by New Brunswick public health, made up of six neurologists, concludes that she is suffering, in particular, from a rare sleep disorder.

Today, she has to get around in a wheelchair.

She manages to keep her spirits up despite everything.

I’m not going to lie, it’s not easy, she said. I have a family and my two dogs, it helps me a lot.

Before, I had an extremely active life: let’s go, I’m going to climb a mountain with my father; I’m going to do skateboard. »

A quote from Geneviève Chayer, from Saint-Leolin

She credits her steely morale and positive attitude to the fact that she’s been through a lot despite her young age.

I was doing so many things. This is what I cling to in the hope that my health will return.

Nearly a dozen patients who are part of the cluster of 48 cases have confirmed to TurnedNews.com in recent weeks that the oversight committee has completed its investigation into their case and has determined that they are not not suffering from neurological syndrome of unknown cause.

Patient group spokesman Steve Ellis also received a letter in the past few days confirming that his father does not have a potential unknown illness.

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